HF Mencap's History

HF MENCAP HISTORY OF CHILDREN AND ADULTS WITH LEARNING DISABILITIES LIVING IN THE LONDON BOROUGH OF HAMMERSMITH AND FULHAM

The Begining
1964

EARLY DAYS

“Hammersmith Society for the mentally handicapped”  formed by a group of parents.

Very little support from Health or Social Services – no Community Learning Disability Team.

The majority of Children and Adults with ‘Mental Handicaps’ (Learning Disabilities)  did not live at home but were placed in Hospitals situated in the countryside miles from their families.

The families were rarely able to visit their Sons and Daughters.

Parents met informally to campaign for services for their children and adults

Gateway Clubs – social groups set up

1980s

HOSPITAL CLOSURES

From the 1980s onwards – Learning Disability hospitals closure programme began with development of community services and community care.

Community Learning Disability Teams established

Group Homes developed

Timelines of learning disability history

1990s

TERMINOLOGY CHANGED

The term ’mentally handicapped’ was no longer acceptable as it was deemed derogatory and disrespectful

Replaced with ‘People with learning disabilities’

Inclusive language

1990s

COMMUNITY SERVICES

Developed across UK - progress was made

However the changes went slowly

Mid 1990s majority of learning disability hospitals finally closed.

1999

H&F ADVOCACY SERVICE SET UP

Funded by Royal Mencap and the LBHF council – with one part-time advocacy worker  TERESA MCGINN

Office in Gayford Road, Shepherds Bush set up

Mainly providing advocacy/self advocacy and advice

2001

THE ‘BEST VALUE’ REVIEW OF SERVICES

Conference led by 10 people with learning disabilities (supported by H&F Advocacy) where 250 people attended

Service users were empowered and made a Film ‘This is my life’

Local Commissioners were impressed and funded three new advocacy posts

2001

SAFETY NET PEOPLE FIRST SET UP

A Self Advocacy group for People with Learning Disabilities

To ‘catch the issues that managers missed”

We Won the Guardian Award for service user participation in review of services

2001

VALUING PEOPLE WHITE PAPER PUBLISHED

The most significant government guidance for services for people with learning disabilities.

The Paper emphasised the principles of rights, independence, choice and inclusion

Valuing People a new strategy for people with learning disabilities in the 21st century

The Valuing People team regularly consulted with H&F Service users

2001

FUNKY NITE NIGHT CLUB SET UP

Monthly Night club pioneering and ground breaking

People trained as DJ’s

People attended from all over London

Other similar clubs set up across London

2002

ONGOING FUNDING AGREED

The local authority agreed to part fund the Advocacy Service

Hammersmith & Fulham Mencap took on the host responsibility for the service.

TERESA MCGINN appointed as Director

The initial trustees were all parents of people with learning disabilities and several were original members from 1964!

2002

JULIAN HILLMAN JOINED AS TRUSTEE

Joined the Trustees Board as Chair of Hammersmith & Fulham Mencap.

2002

PARENTSACTIVE SET UP

Parents of disabled children approached Mencap asking for support to set up a parents group and forum.

2005

MENTAL CAPACITY ACT

People have the right to make their own decisions if they have the capacity to do so

Mental Capacity Act (2005)

2007

MENCAP DEATH BY INDIFFERENCE

Exposed the fatal consequences of inequalities in NHS healthcare for People with Learning Disabilities

Death by Indifference

2007

PARENTS/CARERS ADVOCACY SET UP

With feedback from parents from the Parentsactive group and local pressures, a new role was created.

2008

MOVED OFFICES TO STAMFORD BROOK CENTRE

Lots of new developments

Person Centred Planning Co-ordinator,

Peer Advocacy Project,

Advocacy for People with Profound and Multiple Learning Disabilities (PMLD)

Early Support Keyworker

Inclusive Play Coordinator

2009

VALUING PEOPLE NOW PUBLISHED

Department of Health reiterated values and urged more rapid implementation of the Proposals for change

Valuing People Now (2009)

2011

RICHARD SHAW JOINED AS TRUSTEE

And as treasurer

2011

WINTERBOURNE VIEW SCANDAL

BBC Panorama exposed awful mistreatment and systemic abuse of People with learning disabilities on Assessment and Treatment in-patient units

BBC News

Winterbourne View Time for change

2012

ESTABLISHED AS A LIMITED COMPANY

Company number 08155114

Companies House

2012

SAMANTHA JOHNSON JOINED AS TRUSTEE

A person with learning disabilities

2014

ANNA DOCHERTY JOINED AS TRUSTEE

2014

MOVED OFFICES TO ASPENLEA ROAD

New developments

Safety Net Youth set up

2015

MYLIFE: OUT AND ABOUT SET UP

A community based service that offers support for adults with a learning disability to access a wide range of activities of their choice within the community as well as in the Centre. People pay for the service using their personal budget provided by their Local Authority which enables them to choose what service they wish to use

2015

TRANSFORMING CARE PROGRAMME

Improving health and care services to ensure that all people can live in the community with the right support

Building the right support published.

Building the Right Support

2016

PATIENT EXPERIENCE NETWORK NATIONAL AWARDS

HF Mencap winner of the Patient Experience award for My Health My Say project in collaboration with Central London Community Healthcare NHS Trust and the Rix Centre

2017

YOUTH DEVELOPMENT PROJECT SET UP

To provide support to young people (aged between 13 and 25 years) to be involved in a positive transition from children to adulthood

2018

MENCAP TREAT ME WELL CAMPAIGN

Treat me well – simple reasonable adjustments make a big difference

A campaign to transform the way the NHS treats patients with learning disabilities

Treat me well

2018

YOUNG PEOPLE’S TRANSITION PROJECT SET UP

To provide support to young people with learning disabilities and mental health difficulties in transitioning from children’s services  to adult  services

2019

LAURA DOUGLAS JOINED AS TRUSTEE

2020

THE CORONAVIRUS PANDEMIC

Impacted on HF Mencap (as well as every other part of society)

We had to develop creative ways to continue to deliver all of our services

2020

FUNDING FOR COMMUNITY ADVOCACY ENDED

Two in house Advocates  left due to funding termination.

The Advocacy Project (TAP) was funded for Care Act Advocacy in LBHF.

2021

AND INTO THE FUTURE

HF MENCAP will continue to rise to the challenge to support adults with learning disabilities, disabled children and parents/carers.

The Future

Facebook

Twitter

Instagram

LinkedIn

TOP